autism
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Why it’s more than just running
Right now, I feel like I’ve gotten a little unnecessarily poetic about running. Almost borderline obnoxious. People ask what it’s like running with J or how it’s helping him and I feel like those questions open the floodgates. I get passionate. I get emotional. I talk about it like it’s some religion or diet everyone should try. What’s gotten into me? I’m an English major. I’m a writer. I’m passionate about literature, music, art, and drama. I’m a staunch advocate for the arts and get irate when funding for those programs gets cut while organized sports often remains untouched. Why am I falling in love with organized sports? Why do…
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J’s First Track Meet
Athleticism is something that J has always struggled with. His brain and body just don’t communicate very well. It started with walking–J was a late walker, taking his first steps around 14 months. At first we thought that it was because J was just a conservative kid–a non risk taker. But then we saw other difficulties in his physical development. We learned he couldn’t jump with two feet off the ground when other toddlers his age found no problem with that. Learning to ride a bike was painful–oh so painful. I would plant J on a bike with training wheels and spend hours a week, pushing his thighs down, reaching…
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Reconciling the Present with the Future
I think it’s almost impossible as a parent with a special needs child to not be constantly thinking about the future. I’ve been guilty a million times over. I’ve kept a running list of potential professions for J since he was 5. -At 5 I thought he might have a potential career as a mail carrier. He created mental maps and physical maps of the neighborhood constantly, complete with Christmas lights, basketball hoops, and flags. The only big hang-up was dogs. At that time, J was terrified of dogs. -I’ve gone back and forth on the idea of a grocery store bagger or even cashier. It’s a low skill job, and…
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The Well Child
At the two year well child visit, J threw an epic tantrum in the examination room. I was alternating rocking W’s car seat with my foot while trying to wrangle J at the same time. Our Illinois pediatrician slipped out of the examination room and returned quietly with a photocopied piece of paper that looked like it was taken from 10-year-old medical textbook. “It’s some information about tantrums,” she said with a tentative smile. “Read through it. It’ll give you some tips.” I did a quick scan in the parking lot when I had the kids immobilized and secure in their car seats, both of them screaming at the top…
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This Mid-Semester Slump
This past week was sort of a bummer week for my middle school kiddos. After two months of working really hard, J started up with some disruptive behaviors at school again. We still aren’t sure why; we’re still trying to figure that out. His principal, teachers, paras, and Steve and I have tried to pool ideas of what it might be. Have there been any changes in routine? Could his mouth be bothering him? (he gnaws cankers into his cheeks and lip like nobody’s business) Could it be daylight savings? (I swear it’s dark by 5 here in Fargo) We’re coming up on the holidays (and once again a change…
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Little Changes and a Step Closer to Empathy
Fall is in full force here in Fargo. J insists that our fridge is stocked with chilled cider and that every morning starts with hot chocolate chip muffins. He has set ideas about these things. I insist that J looks for the changes in the trees as we walk to the high school for XC practice. Fall is by far the best reminder for me that little changes happen every day. The way that the tops of a maple catch crimson one day and in a few more days the fiery red has spread to the next tier of branches and then the next week a new tier catches fire.…
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When Family Can Help You Settle Your Glitter
I feel like the summer is flying by and we’ll be starting school again in no time. I was talking to a co-worker last week and we both decided that the fourth of July is the halfway mark of summer. After that it’s just a fast downhill descent to the beginning of fall semester. That means J will be soon starting grade seven and I’m not ready for that. We’ve got so many things to learn and work on before that happens. We’ve been working on handwriting, but I want that to be at a better place before school starts. We’ve been working on reading comprehension but not as much as I’d like.…
