• 18+,  IEP,  post high school,  post secondary autism

    A Glossary of Agencies and Services

    Thursday of last week we met J’s case manager at Developmental Disabilities (Human Services, state of North Dakota) for his yearly check in. And as we chatted, I asked his case manager all the questions—again. It’s been about 18 years since I’ve been first introduced to all of the options and programming for individuals with special needs, and it feels like it was much simpler. Most of the programming J received was through the public school system. He was shuffled into early intervention education even before his preschool years, and he’s rode the public school programming all the way up until graduation. After graduation, we’re learning it all over again.…

    Comments Off on A Glossary of Agencies and Services
  • anxiety,  autism,  high school,  medication,  post high school,  post secondary autism

    Prognosis

    This week involved parent teacher conferences, a conference call with a guardianship lawyer, and driving to school to help J through an evacuation drill. I’ve thought a lot this week about how grateful I am for teachers who are flexible with their classrooms and curriculum to allow J to participate in the ways he can with his peers. I’ve thought about “the end of all public school things” and “adulthood” and what J’s future will look like and how much participation on our end will be needed as parents. I’ve thought a lot about J’s anxiety and how he just can’t seem to make it to the pre-determined time before…

  • anxiety,  autism,  post high school,  post secondary autism,  reading,  reading comprehension,  teen years

    2020

    I’m not into numbers like J, but 2020 is going to be an interesting year for our Beck family. And I’m trying to keep my 2020 outlook on my family because the year’s barely started and between the Australian fires and the Iran stuff happening (my sister lives in Saudi Arabia, so I’m always nervous when stuff happens out there) there’s some really disheartening things happening in the world right now and we’re only six days into the new year. So… We’re heading into that stretch of the “end of childhood and into adulthood” with J, which is equal parts terrifying and exiting. In May, he’ll be finishing grade 11.…

  • autism,  cross-country,  high school,  post high school,  post secondary autism

    Still so much to learn

    Steve and I attended J’s XC recognition last night. It’s hard to believe next year will be his last one. I feel like every week that passes takes us faster and faster to his graduation day. I have so many mixed feelings about that. J has built such a great network of supportive adults and friends who have all been so very important in his life. I know these adults and friends will always love and support J post graduation, but life goes on and his friends will find their own track as adults and the adults in his life will continue the roles they have in helping other kids…